Terry Fox International grant awarded to researcher looking to personalize treatment for infants with brain cancer For years, most children under the age of three diagnosed with an aggressive brain cancer known as medulloblastoma have been treated with a “one-size-fits-all” therapy that, while effective in removing brain tumours, often leaves them with irreversible brain damage. Luckily, new technologies are bringing hope to these children. Recent advances in the field of genomics have allowed doctors to understand that not all medulloblastomas are the same, and that not all children need aggressive therapies to get better. These technologies are also helping a new Terry Fox International Grant awardee from Argentina to see exactly which children will benefit from a less aggressive therapy that has shown great success in treating the disease. “In Argentina, we treat infants under the age of three with medulloblastoma using a de-escalated regimen that’s very similar to what is used to treat leukemia and that has excellent results in many patients,” said Dr. Lorena Baroni (Hospital Garrahan, Buenos Aires, Argentina). “My goal for this project is to use molecular analysis on samples brought from Argentina to see if there are any molecular indicators that can predict exactly which kids will benefit from this de-escalated strategy.” Dr. Baroni’s grant is funded by Terry Fox Runs held at international schools around the world, including her hometown of Buenos Aires, Argentina. The grant will allow her to use high-grade sequencers at the SickKids Hospital in Toronto to perform the molecular analyses needed to perform her research, while also allowing her to verify this data by comparing it with samples collected in 10 different centres around the world. By the end of the project, she hopes to be able to create a protocol that could help improve survival rates [...]
YOU DID IT WILL!!!! 94 year old Will Dwyer's goal is to raise $1 million for The Terry Fox Foundation, and he has officially made it! Over the past 39 years (he's never missed a Run) Will has raised over $1,000,000 for cancer research. However this might be the last year he's able to get out and fundraise. Will has cancer, but like Terry he's not letting that slow him down. You'll see Will out almost daily around the city to canvass different neighbourhoods on foot. He goes door-to-door, visiting almost every house. He's even fallen several times, but just gets right back up and keeps going. Like Terry indeed. Will mission also touches home, having lost two sons and his mother to cancer. "What keeps you going?" Will's son asks "To find a cure for cancer" has always been his reply. Will we are so, so grateful for your efforts... Donate to Will
"My Students call me Mme. Terry Fox!" I was 25 when I first heard the name Terry Fox. I’d just moved to Port Cartier, Quebec to begin a career in teaching and was following Terry’s journey. Shortly after Terry was forced to stop his Run near Thunder Bay, CTV's Lloyd Roberston hosted a telethon and asked the nation to “do something spontaneous for Terry”. I was inspired and compelled to act, so I gathered a friend and ten of my students from Riverview School in Port Cartier, Quebec to join a “Run for Terry”. I’ll be doing my 40th this year and haven’t missed one since 1980. Terry’s name was new to me back then, but cancer wasn’t. My Dad died of lung cancer in 1976 when he was only 43, which still seems impossibly young. At that time, cancer was such a mystery and treatments were unrefined. I’ve remained committed to The Terry Fox Foundation because I see their research continuing to improve and contributing to better patient outcomes. I truly believe that the advancements made possible by research would have benefitted my Dad if he were being treated today. I recently decided to create a gift in my will for The Terry Fox Foundation, which wasn’t spontaneous, but is incredibly meaningful to me. As a long-time volunteer, donor, and fundraiser to this organization, I know that research takes time and understand that each step matters in achieving a goal. The gift in my will is one of those steps and a tribute to the people I’ve lost to cancer and the patients I’ll never meet. As a long time Terry Fox’er, I’m proud to be a part of the past, present, and future of this organization and Terry’s dream. If you’ve ever thought about creating a [...]
Meet Aiden: Hockey Player and 10 Year Cancer Survivor Diagnosed with bladder cancer at only 10 weeks old, Aiden’s family knew that he would have a long road ahead. Aiden endured 42 weeks of chemotherapy treatment and surgery to remove the tumor. Six months later, his cancer came back, resulting in another surgery and more chemo and radiation. Fast forward to 2019 and Aiden is now 12 with a passion for hockey. A loyal Ottawa Senators fan, he loves cheering on his team, but also hitting the ice himself. Aiden continues to stay positive and challenge himself to reach new heights and overcome obstacles just like his hero Terry Fox. Aiden shares his story today with everyone he meets in the hopes that he too will inspire greater fundraising for cancer research so that other people won’t have to go through what he did. Aiden is proud to be the 2019 Terry Fox School Ambassador.
Happy Holidays Terry's nieces, Kirsten and Jessie, would like to share a special holiday message, please enjoy.
Fred Fox visits NYC - another amazing Run! "The 25th annual New York City Terry Fox Run was so fantastic. So great to be in Central Park with about 3000 other Terry Fox supporters. Ken Ottenbreit, Jeff Berman and Tom Madden, along with the committee members and volunteers do an amazing job. It was a wet morning, but in Terry's spirit and the weather he ran through in 1980, participants didn't mind a little rain to come out in the commitment to raise funds for cancer research. It was so nice to meet so many Canadians that now call NY home and have participated here for years, but also Americans who are inspired by Terry's story. Lots of team participation here in NY, cool to see many Canadian university alumni groups participating. Met with a few teams, the Four Seasons Hotel, CIBC, City Squash, Star Mountain Capital. It was special to finally meet Dick Traum who planted that seed in Terry's mind after reading an article about Dick running the NYC marathon as an amputee. So amazing to see the strength of Terry's legacy here in New York City. Over $3 million raised since year one. The funds raised here support cancer research at the Memorial Sloan Kettering Cancer Centre and are making a difference in the lives of many. Just what Terry wanted, but never realizing the reach around the world his story and sacrifice would have 38 years after the Marathon of Hope. Thank you to good Saskatchewan boy, Ken Ottenbreit for your initial hard work and dedication to start the TF Run in New York City and your continued commitment to Terry's dream. It was great to finally meet you Ken, thank you for the invite to NY." - Fred Fox Click to see next [...]
Terry would be so proud... As someone who loved a challenge, Terry would have been the first person at the Brantford Terry Fox Run finish line to fist-bump Luca as he completed his first ever fundraising walk this year. Luca is deafblind - but like Terry, he's a pretty hard guy to slow down. Participating in the Brantford Terry Fox Run was an It’s My Life SMART goal for Luca, devised by his Intervenor Services team with input from his parents. The goal reflected Luca’s love of the outdoors and being out in his community, the desire to give back to his community and being involved in a fundraiser. Luca spent months preparing, creating flyers to put up in the Resource Centre and in the community to educate others about the charity event. He also canvassed for donations with the original goal of $200. He ended up raising a remarkable $578. A super cool touch ... Luca, roommates Daniel and Dorell, and Tamara had T-shirts made with Terry Fox spelled in American Sign Language for the event. Thank you to the Canadian Deafblind Association of Ontario for the photos. Click here for next story
Meet John - he's kinda awesome John Hopkins was working in Winnipeg when he first heard about the young man running across Canada. “To know a man on one leg made it half way was extraordinary” John shares. “And his efforts have united Canada with so many runs done in his name.” Terry’s eventual death had a strong impact on John. John began volunteering, with his wife Helen, for the Terry Fox Run in Richmond, BC in 1986. Richmond is the community where he and his wife Helen made a home, raised their son, and took part in their first Terry Fox Run. Later, it was where he also first felt personally impacted by cancer. In 1999 Helen was diagnosed with lymphoma, and so began a twelve-year journey with cancer. Like many people faced with a life-threatening illness, they wanted all the information they could get. Through research and conversations with Helen’s doctors, they quickly learned how complicated and unpredictable cancer is. The number of treatment options were limited and for many cancer types, there was a “one size fits all” approach. After being treated for lymphoma, Helen underwent two operations for breast cancer and then melanoma of the eye, which metastasized to her liver. The cancer wouldn’t let up. Helen passed away five years ago. She died in the palliative care facility she helped set up at Richmond Hospital where she worked. John and Helen were married for 49 years and loved each other deeply but unfortunately John’s cancer journey doesn’t end there. Two years ago, John was diagnosed with papillary thyroid cancer. After two successful operations, he is now a cancer survivor – and has the Terry Fox red t-shirt to prove it! He knows there were people with the same cancer who came before him [...]
Win Toronto Rock goalie Brandon Miller's custom mask Brandon Miller is a long-time Terry Fox Run participant and childhood cancer survivor. He is also the goalie for the Toronto Rock lacrosse team. This year he has joined together with a well known graphic designer, David Arrigo, to design a special “Terry Fox” mask, to pay tribute to his greatest hero. On the back of the mask are the names of young cancer patients and survivors who inspire Brandon and the Foundation every day with their courage and perseverance. Brandon and the Rock are planning to auction it off at the end of the season to raise funds for cancer research. A $20 donation gives you one participation ballot in the draw to win this one-of-a-kind mask! The draw will take place at the Toronto Rock's final home game of the season on Friday April 13, 2018. Support Brandon's efforts
Canadian pediatric researchers, funders join forces, commit $16.4M to give young people across the country a fighting chance against cancer For the first time in Canadian history, more than 30 pediatric cancer research and funding organizations have joined forces through Terry Fox PROFYLE, a pan-Canadian project to give children, adolescents and young adults who are out of conventional treatment options another chance to beat their cancer. Short for PRecision Oncology For Young peopLE, the Terry Fox Research Institute (TFRI) and these research and funding partners are working and fundraising together under a unique partnership that to date is providing a total of $16.4 million to molecularly profile the tumours of these patients, no matter where they live in Canada. For example, if Terry Fox had been diagnosed with cancer today, he would have been eligible for PROFYLE when the tumour returned and spread to his lungs. A $5-million investment by TFRI is the catalyst bringing together top scientists and clinicians, research centres, cancer charities and foundations at children’s hospitals across the country to create new hope for young people who need it the most. Eight-year-old Marlow Ploughman is one of these children. When her late-stage rhabdomyosarcoma (muscle cancer) relapsed for the fourth time, doctors told Marlow’s parents there were no more conventional treatments left to try. The news was devastating – but then the Kingston, Ont. family learned about Terry Fox PROFYLE. “[Terry Fox PROFYLE] is extremely important, because with children like Marlow we have very few options except the one conventional protocol that we’re given,” said Marlow’s mom, Tanya Boehm. “PROFYLE provides a key to unlock the door to perhaps more options -- or at least provides us more time to wait for some more options to come.” While there has been dramatic [...]
Meet Jordan Lea - A Terry Fox 360 Participant On August 12th, Terry Fox’s brother Darrell and his Road of Hope cycling team will cycle 360km from Sun Peaks to Mt. Terry Fox raising funds for cancer research. With the event just around the corner, we thought we would share the story of one of it's participants, Jordan Lea. Jordan is one of the most inspirational athletes out there. In 1994, Jordan was diagnosed with Non-Hodgkins lymphoma. The cancer took four years to cure and completely changed his life. Following the cancer, he competed as an ultra athlete in more than ten marathons, five ultra-marathons, four Ironman triathlons, and an Ultraman triathlon. In 2004, a bone infection appeared in his left foot that he would fight—enduring intense rounds of IV antibiotics, hospitalizations and surgeries—for the next nine years. In January of 2012, his doctors attempted a trans-metatarsal (front of the foot) amputation to remove the infection. In spite of this, the infection recurred nine months later, leaving his body in septic shock. A trans-tibia amputation (just below the knee) was considered the best and possibly only option to eradicate the infection and return to an active life. Since his amputation, he has supported other amputees through public speaking engagements and one-on-one mentorships. In 2014, eighteen months post-amputation, he returned to competition after eight years of illness and recovery. You can meet Jordan, Darrell and all of the other incredible riders at this year's Terry Fox 360. This year the Road of Hope Team is looking to surpass it's 2016 total of $40K! To support Jordan, Darrel and the rest of the riders or to learn more about the event please click the button below. Learn More
New Canada 150 Stamp Honour's Terry Fox Terry Fox’s sister unveils stamp honouring Canadian icon and one of Canada’s unforgettable moments of last 50 years. Judith Fox was in Newfoundland on May 25 to launch a new stamp honouring her brother’s remarkable Marathon of Hope. Terry’s run inspired Canadians, captivated a country, and launched a lasting legacy across Canada and around the world. Judith unveiled Canada Post’s stamp at a ceremony at St. John’s City Hall, not far from Mile 0 – the spot where the Marathon of Hope began on April 12, 1980 when Terry Fox dipped his artificial right leg into the Atlantic Ocean. Children from Roncalli Elementary in St. John’s also participated in the ceremony and proudly displayed posters explaining how Fox has inspired them to believe they can achieve whatever goals they have in life. Terry Fox’s Marathon of Hope is one of the most identifiable and cherished events in Canadian history. It remains an enduring symbol of courage, selflessness and hope.
It started as an innocent looking email from the Terry Fox Organization. I had participated in the Terry Fox Run as a kid in school, but also more recently for the last 12 years since going through my own cancer journey. I'd never done a hike to the top of a mountain of this magnitude before. I was intrigued. I soon decided I could do this and started a training plan that expanded upon my usual 10k running, but also included going up and down thousands of stairs. None of this training prepared me for the emotional journey I was about to take up Terry Fox Mountain. I consider myself very lucky in many ways, first of all for surviving cancer, but in other ways as well. I grew up in a small town in southern Ontario and I got to see Terry as he passed through our town. I was only 7 years old, but remember my brothers and I jumping on our bikes to see this 'one legged man who had cancer' and was running across Canada! I met a 'new' member of Terry's team at the bottom of the mountain only 10 minutes into my trek who seemed to be struggling a bit with his new reality. I shared my own cancer story with him and tried to leave him with a sense of optimism and hope. Little did I know that this encounter would be my source of inspiration and strength for the day's (at times) gruelling hike. As a cancer survivor, sometimes I feel all I can do to help is reach out to others to try to ease their suffering. Once we got above the tree line out in the open, we were in fog, in a cloud. This continued for the rest of the day [...]
Terry Fox Foundation announces new Board of Directors The Terry Fox Foundation hosted its Annual General Meeting where newly elected board members gathered for the first time. At the meeting, the board of directors unanimously supported a resolution that expressed their genuine appreciation to Mr. Isadore Sharp for his dedicated service to the Marathon of Hope over the past 33 years. In recognition of his long term commitment to Terry's vision of eradicating cancer Mr. Sharp was elected to the new role of chairman emeritus to the Board. Mr. Sharp was the first Canadian corporate leader to support Terry's courageous journey and was founder of the annual run. The Marathon of Hope has raised more than half a billion dollars for cancer research. In the fall of 1980 after cancer forced Terry to return to Vancouver for treatment, Mr. Sharp proposed organizing an annual fundraising run named the "The Terry Fox Run". He wrote in a telegram to Terry: "The Marathon of Hope has just begun. You started it. We will not rest until your dream to find a cure is realized ... your courage and determination has been an inspiration to us." "Mr. Sharp's steadfast support for The Terry Fox Foundation, our volunteers, our donors and most of all, to each member of our family, from the very beginning has been a valuable and enormous contribution to the successful growth of the annual Terry Fox Run both across Canada and around the world", stated Judith Fox-Alder on behalf of the Fox family. Terry's father Rolly and Terry's three siblings, Fred, Darrell and Judi are responsible for electing board members. Further to this, the Fox family is delighted to announce the appointment of Bill Pristanski, Jim Gabel and Ara Sahakian to the TFF Board. The addition of Bill, [...]